Pink Elephants |
There is a huge problem in trying to manage pain in a profoundly demented and deaf patient. I had seen a functional decline in Dad within the couple of weeks before the diagnosis of cancer. With the addition of pain medications the functional decline was even worse. Bone Cancer is unbelievably painful. Dad has always been pain tough, but clearly the bone cancer is tougher. He has gone from taking no pain meds to taking ms oxycodone, liquid hydrocodone, and liquid fast acting morphine for break through pain. Dad occasionally took a little Advil or Tylenol for a thumb that got a little sore when he went bowling. At 81 he was hiking Hadrian's Wall with Jon and me in Northumberland. He was never infirm or arthritis ridden. Now he is cancer ridden and taking the big boys of pain management.
Hadrian's Wall |
Dad was sitting in a wheelchair with an attendant. He was wearing nothing but a pair of depends with a thin white blanket over his lap which I watched him pull off a few moments later. He doesn't recognize me and the attendant says he is clearly delusional and keeps talking about having to go to the basement or up two flights of stairs. It takes me only a moment to see that for myself. So I go and put on gloves (this particular morphine will go right through your skin, which might be fun under other circumstances) and draw up .25ml and walk back down the hall to dad. But this isn't feeling or looking like pain to me. He won't tolerate anything on his skin, neither the very light blanket or the hospital gown they tried to drape him with. He is not reaching for his shoulder and his hands and skin are hot to the touch, but it doesn't seem to be fever induced. I decide this isn't a need for more pain meds, this is a case of too much medication. Back to the medication room and a call to Hospice to consult.
Dad received no more pain meds that night, was watched carefully and tended to compassionately while his system cleared the drugs from his system. Tomorrow would be a new day and a new consultation to try and find a protocol that would manage the pain without a bad case of Pink Elephants. No one said midwifing the dying was easy.
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